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Privacy Policy

1. Information We Collect

We may collect the following types of information:
a. Personal Information:
When you submit your story or contact us, we may collect your name, email address, phone number, location, and any other information you choose to provide.
 

b. Story Submissions:
If you share a personal story (e.g., as a cancer patient, caregiver, health provider, or advocate), we may collect sensitive details you provide about your health or personal experiences. Submitting this information is voluntary.
 

c. Non-Personal Information:
We may collect certain technical data (IP address, browser type, etc.) using cookies and analytics tools.

2. How We Use Your Information

We may use your information to:

  • Consider your story for advocacy and communication purposes

  • Contact you for permission to publicly share your story

  • With your consent, share your story on:

  • Our website or social media

  • With policymakers

  • With the press

  • At events or campaigns

  • Respond to your messages

  • Improve our content and advocacy efforts

3. Consent and Control Over Your Story

We will never publicly share your name, photo, or personal story without your explicit permission. We will contact you to confirm your preferences before publishing or sharing.

 

You may request:

  • Anonymity

  • Removal of previously shared content

  • To be contacted (or not) for speaking/media opportunities

 

You can withdraw consent at any time by contacting us at contact@patientactioncr.org.

4. Cookies and Tracking Technologies

We may use cookies to analyze traffic and improve the Site. You can manage cookie settings in your browser.

5. Information Sharing

We do not sell or rent your information. We may share it with:

  • Our internal communications and policy team

  • Reporters, lawmakers, or event organizers only with your consent

  • Our website host, Wix, which processes data on our behalf

  • Legal authorities, if required by law

6. Data Security

We take reasonable steps to protect your personal information. However, no system is completely secure.

7. Your Rights

Depending on where you live, you may have the right to:

  • Access or correct your data

  • Withdraw consent

  • Request deletion

 

To exercise your rights, email us at support@patientactioncr.org.

8. Third-Party Services

This Site is hosted on Wix.com. See their Privacy Policy for details on how they process your data.

9. Children’s Privacy

Our site is not intended for children under 13. We do not knowingly collect information from minors without parental consent.

10. Changes to This Policy

We may update this Privacy Policy at any time. Updates will be posted here with a new effective date.

11. Contact Us

Have questions? Want to change or remove your information?
Email: contact@patientactioncr.org

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